Get involved in the PREMSTEM project

What is co-creation?

Co-creation is a method which allows the involvement of various stakeholder groups, for example of a service or product, to work with a company on an idea or concept. 

Co-creation can help people involved in a project to see beyond their own perspectives by letting external people provide feedback, describe experiences, offer ideas and inputs on a particular idea, product or concept.

Co-creation can reveal insights that haven’t been considered before. This type of consultation and collaboration between a company and its consumers can help to improve products, ideas and services. It can also help to create new ideas, all based upon the views of people who might one day use or benefit from them. 

Credit: geralt (Pixabay)

Why are we using co-creation in the PREMSTEM project?

We want to give people from outside of the project an opportunity to have a say in the research we’re doing. Our long-term aim is to take our stem cell therapy for preterm brain injury to clinical trial. To get there it’s important for us to understand and be aware of any potential barriers, both from a societal and regulatory point of view. What is the best way to do this? By hearing opinions and insights from people who represent the future users and beneficiaries of the research!

PREMSTEM’s co-creation challenge

How can we lay the groundwork for societal and professional acceptance to perform clinical trials with stem cells in medically fragile preterm infants?

Who can participate?

We’re looking for people who self-identify in one of the following categories:

  • Member of the PREMSTEM Patient/Consumer Advisory Board or a patient/consumer organisation/advocacy group
  • Member of the PREMSTEM Ethics/Institutional Review Board committee
  • Parents/carers of a preterm baby or young child who might be eligible for a future stem cell treatment and/or adults who were born preterm
  • Parents/carers of a child with no known health issues
  • Clinicians or other health professionals
  • Researchers (preferably in the health sciences)
  • Policy makers
  • Governance/regulatory bodies
  • Other interested parties 

What are the co-creation activities?

10 online co-creation workshops between June 2022 and February 2024 (with a break for the interview phase)

There will be up to 20-25 participants in each workshop. We’ll aim for as much consistency in the group as possible. 

One-on-one interviews between March and September 2023

A small number of people will also participate in a one-on-one interview via video call in order to share more individual and deeper insights in addition to the workshops. Interviews will take place with people who represent the following stakeholder groups:

  • Parents of preterm-born children who have been enrolled in a clinical trial 
  • Neonatologists and nurses who have worked on clinical trials with preterm-born children 
  • Adults who could have been eligible for a treatment as a child
  • Media professionals

Who is running the activities?

PREMSTEM partner RMIT Europe is coordinating the co-creation activities.

The activities will be facilitated by Punk Design who are specialists in design thinking, human-centred design, LEGO® SERIOUS PLAY® and designing methodologies to solve global challenges.

What is the participant's role?

As a participant in the co-creation activities, we’ll ask for your insights and inputs on different aspects related to PREMSTEM’s research and aim of taking the stem cell therapy to clinical trial. Your participation will help us to:

  • Define key stakeholders to influence with communication
  • Define concerns and obstacles
  • Define personas (profiling/identifying different types of end users and their needs for the PREMSTEM therapy)
  • Create a strategy for social and professional acceptance of the PREMSTEM therapy

What is the time commitment?

We’d like as many of the same people to take part in the co-creation workshops. Workshops will take place between June 2022 and February 2024. Each session lasts three hours. We understand that this is a large, unpaid time commitment for participants and appreciate all contributions and participations in these activities. We aim to run the co-creation workshops at a time suitable to participants attending from Europe and Australia. 

One-on-one interviews last approximately one hour. RMIT Europe works with participants after the interview to approve the transcription of the discussion. 

What is LEGO® SERIOUS PLAY® like?

Co-creation facilitator, Enrique Conches, and PREMSTEM researcher Bobbi Fleiss tried out LEGO® SERIOUS PLAY® as a tool to answer two questions: 

  • Why is it important to participate in the co-creation sessions?
  • What is the value of the co-creation sessions for the project? 

This was Bobbi’s first experience of using this building technique to explain a concept. See how she got on in the videos below!

Are you interested in taking part?

If you’re interested in taking part in the PREMSTEM co-creation workshops and identify as being a representative of one of the groups listed above, please get in touch via our contact form!

PREMSTEM’s co-creation workshops and interviews have now finished. A huge thank you to everyone who participated and contributed to this part of the project!

The PREMSTEM co-creation activities have been approved by the RMIT University STEM College Human Ethics Advisory Network as they meet the requirements of the National Statement on Ethical Conduct in Human Research (NHMRC, 2007).

Further information

Before submitting an expression of interest, please carefully read the following:

Participant Information Sheet (PDF)

Co-creation roadmap and agenda (PDF) 

Please note that all activities will be conducted in the English language. All participation is on a voluntary basis and participants can withdraw at any time. No reimbursement is available for these activities.