Get involved in the PREMSTEM project
What is co-creation?
Co-creation is a method which allows the involvement of various stakeholder groups, for example of a service or product, to work with a company on an idea or concept.
Co-creation can help people involved in a project to see beyond their own perspectives by letting external people provide feedback, describe experiences, offer ideas and inputs on a particular idea, product or concept.
Co-creation can reveal insights that haven’t been considered before. This type of consultation and collaboration between a company and its consumers can help to improve products, ideas and services. It can also help to create new ideas, all based upon the views of people who might one day use or benefit from them.
Credit: geralt (Pixabay)
Why are we using co-creation in the PREMSTEM project?
We want to give people from outside of the project an opportunity to have a say in the research we’re doing. Our long-term aim is to take our stem cell therapy for preterm brain injury to clinical trial. To get there it’s important for us to understand and be aware of any potential barriers, both from a societal and regulatory point of view.
What is the best way to do this? By hearing opinions and insights from people who represent the future users and beneficiaries of the research!
Who can participate?
We’re looking for people who self-identify in one of the following categories:
- Member of the PREMSTEM Patient/Consumer Advisory Board or a patient/consumer organisation/advocacy group
- Member of the PREMSTEM Ethics/Institutional Review Board committee
- Parents/carers of a preterm baby or young child who might be eligible for a future stem cell treatment and/or adults who were born preterm
- Parents/carers of a child with no known health issues
- Clinicians or other health professionals
- Researchers (preferably in the health sciences)
- Policy makers
- Governance/regulatory bodies
- Other interested parties
What are the co-creation activities?
10 online co-creation workshops taking place approximately once per month between June 2022 and June 2023
We’ll invite 20-25 participants to each workshop, aiming for as much consistency in the group as possible.
One-on-one interviews from January 2023
A small number of people will also participate in a one-on-one interview via telephone or video call in order to share more individual and deeper insights in addition to the workshops. Interviews will take place with people who represent the following stakeholder groups:
- Parents, families and patients
- Government, politicians and regulatory bodies
- Research teams, researchers and physicians
What is the participant's role?
As a participant in the co-creation activities, we’ll ask for your insights and inputs on different aspects related to PREMSTEM’s research and aim of taking the stem cell therapy to clinical trial. Your participation will help us to:
- Define key stakeholders to influence with communication
- Define concerns and obstacles
- Define personas (profiling/identifying different types of end users and their needs for the PREMSTEM therapy)
- Create a strategy for social and professional acceptance of the PREMSTEM therapy
What is the time commitment?
We’d like as many of the same people to take part in the co-creation workshops. Workshops will take place approximately once per month between June 2022 and June 2023. Each session will last 3 hours.
We understand that this is a large, unpaid time commitment for participants. If a regular participant cannot attend a session, we’ll invite another person who’s submitted an expression of interest and represents the same stakeholder group to attend in their place.
We’ll aim to run the co-creation workshops at a time suitable to participants attending from Europe and Australia.
One-on-one interviews will last approximately 1 hour. The facilitator will work with participants after the interview to approve the transcription of the discussion.
What has happened so far?
What is LEGO® SERIOUS PLAY® like?
Co-creation facilitator, Enrique Conches, and PREMSTEM researcher Bobbi Fleiss tried out LEGO® SERIOUS PLAY® as a tool to answer two questions:
- Why is it important to participate in the co-creation sessions?
- What is the value of the co-creation sessions for the project?
This was Bobbi’s first experience of using this building technique to explain a concept. See how she got on in the videos below!
Are you interested in taking part?
If you’re interested in taking part in the PREMSTEM co-creation activities (either workshops or an interview) and identify as being a representative of one of the groups listed above, please get in touch via our contact form!
- Workshop 6 will take place in early 2023
- We expect to run interviews from January 2023
The PREMSTEM co-creation activities have been approved by the RMIT University STEM College Human Ethics Advisory Network as they meet the requirements of the National Statement on Ethical Conduct in Human Research (NHMRC, 2007).
Before submitting an expression of interest, please carefully read the following:
Please note that all activities will be conducted in the English language. All participation is on a voluntary basis and participants can withdraw at any time. No reimbursement is available for these activities.