Elisabet Farga Carrera

Elisabet Farga Carrera

Elisabet Farga Carrera
President/founder
Som Prematurs (Spain)

Session: Learnings from co-creation: involving external stakeholders in research – Thursday 15 May (8.30-10am​)

Elisabet Farga Carrera is the president and founder of the Premature Babies Association of Catalonia – Som Prematurs – and a mother of premature twins. She is deeply involved in co-creation forums, including the PADEICS Group and the Pediatrics Program: NIDCAP of the ICS (Institut Català de la Salut). She also serves on the Family Council at Hospital Sant Joan de Déu in Barcelona, where she helps evaluate and improve paediatric care. As part of Som Prematurs, she actively participates in committees like RECLIP (Spanish Pediatric Clinical Trials Network) and the Simulation and Teaching Committee at Vall d’Hebron Hospital in Barcelona and PARENTS KIDS part of i4KIDS is a Pediatric Innovation Hub, coordinated by Sant Joan de Déu Barcelona Children’s Hospital. Her leadership in the Expert Patient incubator care program has led to the development of key initiatives in more than 15 hospitals across Catalonia, contributing to the co-creation and helping to improve neonatal care introducing the patient expert in the internal organisation of these units.

The main goals of Som Prematurs are:

  • The benefits of involving lived experience
  • Role in co-creation
  • Elevating the voice of experience